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Recommended Books on Paralysis
Polio and Its Aftermath: The Paralysis of Culture
It was not long ago that scientists proclaimed victory over polio, the dread disease of the 1950s. More recently polio resurfaced, not conquered at all, spreading across the countries of Africa. As we once again face the specter of this disease, along with other killers like AIDS and SARS, this powerful book reminds us of the personal cost, the cultural implications, and the historical significance of one of modern humanity's deadliest biological enemies. In Polio and Its Aftermath Marc Shell, himself a victim of polio, offers an inspired analysis of the disease. Part memoir, part cultural criticism and history, part meditation on the meaning of disease, Shell's work combines the understanding of a medical researcher with the sensitivity of a literary critic. He deftly draws a detailed yet broad picture of the lived experience of a crippling disease as it makes it way into every facet of human existence. Polio and Its Aftermath conveys the widespread panic that struck as the disease swept the world in the mid-fifties. It captures an atmosphere in which polio vied with the Cold War as the greatest cause of unrest in North America--and in which a strange and often debilitating uncertainty was one of the disease's salient but least treatable symptoms. Polio particularly afflicted the young, and Shell explores what this meant to families and communities. And he reveals why, in spite of the worldwide relief that greeted Jonas Salk's vaccine as a miracle of modern science, we have much more to fear from polio now than we know.
Facial Paralysis: Rehabilitation Techniques Derived from the second edition of the world-famous The Facial Nerve, this targeted new book offers the most comprehensive approach to rehabilitating patients with acute and long-standing facial paralysis. Representing more than 30 years experience of doctors who have performed over 3,000 surgical procedures, it begins with a history of facial rehabilitative surgery, and then focuses on approaches that have proven to be successful over the years. For each surgical operation, you'll get key details on patient selection, indications, contraindications, complications, and more. The book provides step-by-step instructions for the techniques, with more than 1,000 illustrations to demonstrate the procedures. Plus, you'll find valuable tips on non-surgical methods of enhancing the results of the procedures, such as makeup, hair styling, or choice of clothing. All reconstructive surgeons--oral-maxillofacial, opthalmoplastic, facial plastic, skull base, otolaryngologic, and neuro--will find this text to be a concise and appealing guide to treating facial paralysis. Residents will also benefit from the wealth of information provided here.
Return: Stroke, Paralysis & Reflections on Recovery Strokes often strike without warning, and that was the case for 48 year-old Ron Roberts. The popular TV weatherman never predicted the drastic change his life would take one January morning. His near-fatal brain bleed tested his will, his spirit, and his marriage.
In her own words, Rons wife Wendy reveals some of the grim realities they confronted on the road to recovery in her first-ever book, Return---Stroke, Paralysis & Reflections on Recovery.
In rehab, the word return refers to the bodys ability to recapture what was lost in a stroke. In this tender collection of reflections, Wendy shares their deep fear and strong faith. For anyone who has ever faced a health crisis, Return is the kind of story that reminds us were not alone, and inspires us to press on.
Stroke is the number one cause of disability, and its this couples shared desire to make a difference in the lives of stroke survivors by donating a percentage of the proceeds from Return to the Scholars Ambucs program. This program provides financial resources for aspiring physical, occupational, and speech therapists. www.ambucs.org
Leap Daniel says: life caused me to grow up fast. Real fast. Like overnight.
Krista says: The real me—the one who knew I should treat Daniel the way I'd want to be treated—was angry at the other me. I just didn't want to lose Bobby by taking sides with Daniel.
Daniel and Krista used to be inseparable. Now that they're older, they've drifted apart—but when an accident leaves Daniel temporarily paralyzed, he needs his old friend more than ever. And Krista wants to help him. Only it's not as easy as it seems, not when Krista's feelings for another boy, Bobby, keep getting in the way. And it doesn't help that Daniel and Bobby were both star swimmers—before Daniel's accident, that is. Growing up is hard on everyone, but it's up to Krista to prove how strong friendship can be.
Millboro and More: Introducing Hypnotherapy for Stroke Paralysis Blue Dolphin Publishing
Life on Wheels: For the Active Wheelchair User Over 1.5 million Americans use wheelchairs for a variety of causes: a congenital condition, traumatic injury, or disease. People who depend upon wheelchairs for mobility are in varied situations. They might live independently or need attendant care; live alone or with family; be employed full-time or no longer working. Despite differences, people dependent on wheelchairs face some similar medical issues and a need to cope with changed circumstances. Life on Wheels: For the Active Wheelchair User is for people who want to take charge of their own life experience while using a wheelchair. Author Gary Karp, ergonomics consultant and long-time chair user, describes:
- Medical issues (paralysis, circulation, rehab experience, choosing the optimal wheelchair, scientific progress toward a cure)
- Day-to-day living (keeping fit, skin care, bowel and bladder care, sexuality, home access, maintaining a wheelchair, wheeling technique, insurance)
- Psychological and social issues (grieving loss, self-image, adjustment to life change, friends, family, asking for and being helped, cultural attitudes, history of disability, and activism)
Vocal Fold Paralysis
New therapeutic options and approaches have been developed based on an expanded knowledge of the underlying pathophysiology of vocal fold paralysis. The core of Vocal Fold Paralysis offers step-by-step descriptions and of the following therapies: vocal fold injection, medialization laryngoplasty, and arytenoid repositioning surgery. It also includes special topics such as reinnervation, vocal fold pacing, bilateral medialization, and pediatric and bilateral vocal fold paralysis. Vocal Fold Paralysis is a clinically useful reference for evaluation and treatment, as well as a summary of current knowledge and investigational approaches. This excellent guide fills a void within the field of otolaryngology and should not be missed by any otorhinolaryngologist, neurologist, phoniatrician or speech pathologist.
Roll Models "I thought life was pretty much over." Paul Herman
"I was afraid people wouldn't see me for who I still was." Cathy Green "I didn't need this to be a better person." Susan Douglas "I wasn't sure I wanted to live 'this way.'" Kevin Wolitzky The above four people and 49 more just like them went on to find high levels of success and lead satisfying lives. Together they tell 53 stories of moving forward to meet all the challenges, fears, obstacles, and problems common to the life-altering circumstances after spinal cord injury, and doing it without benefit of wealth, large settlements or solid health coverage. Ranging in age from 21 to 67, disabled from three to 48 years they share 931 years of disability experience. Roll Models is a valuable new resource for recently injured people and their families, and for nurses, therapists, psychologists and all other professionals who treat, work with and care for people with spinal cord injury. Straight from the horse's mouth, survivors explore their experiences with disability and answer many questions those in rehab are asking:
Early Thoughts
What were your thoughts immediately following injury?
What were your initial thoughts and reactions regarding SCI and the future? The First Years
What were your biggest fears during that first year or so?
How did you get past those early fears? Changes, Obstacles and Solutions
How much different are you now, compared to how you were before injury?
What's been the biggest obstacle?
How did you address these obstacles? Finding What Works
What have been the most difficult things for you to deal with since injury?
What's the worst thing about having an SCI and using a chair?
What's been your biggest loss due to injury?
Is SCI the worst thing that ever happened to you?
Tell me something about your problem solving skills.
How do you deal with stress? What do you do to relieve stress?
Salvations, Turning Points and More
Was there any one thing that was your "salvation" or key to your success?
Was there a turning point for you when you began to feel things were going to get better?
What personal factors, habits and beliefs have helped you the most? SCI and Meaning
Do you find any meaning, purpose or lessons in your disability?
Did any positive opportunities come your way because of your injury?
What's your greatest accomplishment? What are you most proud of?
Dewey Doo-it Helps Owlie Fly Again: A Musical Storybook inspired by Christopher Reeve to benefit the Christopher Reeve Paralysis Foundation (Dewey Doo-It Musical Storybooks) Dewey and the Helpful Doo-its teach children to care. They help their friend Owlie learn to fly again. Proceeds benefit The Christopher Reeve Foundation.
Spinocerebellar Degenerations: The Ataxias and Spastic Paraplegias: Blue Books of Neurology Series (Blue Books of Neurology) Apply the expertise of today's leading authorities all from the forefront of research and clinical practice! This volume in the Blue Books of Neurology series provides rapid access to essential information on the clinical features, differential diagnosis, genetic testing, and management of a broad group of spinocerebellar degenerative disorders, including ataxias and spastic paraplegias. It delivers the guidance you need to accurately diagnose and manage your patients' conditions using today's most effective methods!
© 2004-2008 Paralysis Research Today. All Rights Reserved.
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